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Master of Science (Msc) Electronic (e)-Learning course in Haemoglobinopathies
Saturday, 12 April 2008

ImageThalassaemia International Federation (TIF) is offering a unique advanced MSc electronic (e)- learning course in Haemoglobinopathies together with University College London (UCL), beginning on the Academic Year of 2008.

This is a unique opportunity for health professionals from around the world to pursue a specialist qualification from a leading university, via distance learning. University College London (UCL), with a history and a contribution to education of more than 150 years, is part of the University of London.  A university with high academic standards and an excellent reputation in distance and electronic (e)-learning courses, all led by  internationally recognised experts and taught by distinguished faculties.

Read more...
 
Seminar on "Iron Chelation in Thalassaemia: Present and Future Prospects"
Wednesday, 12 December 2007
ImageBangladesh Thalassaemia Foundation and Bangladesh Society of Hematology jointly organized a seminar entitled “Iron Chelation in Thalassaemia: Present and future prospects” at BIRDEM auditorium in the city on December 12, 2007. Eminent specialist physicians of the country discussed about the importance of iron chelation in the treatment of thalassaemia.

Chairman of the Hematology Department of Bangabandhu Sheikh Mujib Medical University (BSMMU) and President of Bangladesh Society of Hematology Professor Dr Jalilur Rahman was present as the chief guest while President of Paediatric Society of Bangladesh Professor Dr M A Mannan and Secretary General of Bangladesh Society of Hematology Professor Dr M A Khan were present as Special Guests in the seminar.
Read more...
 
Country's first DNA Lab for Thalassemia opens at BSMMU
Monday, 17 September 2007
ImageThe first DNA laboratory for diagnosing thalassaemia opened at Bangabandhu Sheikh Mujib Medical University on Monday, 17 September 2007. "Thalassaemia is one of the deadliest child diseases in the country. The launch of the DNA lab to diagnose the disease is a promising event," said health adviser ASM Matiur Rahman, who attended the inaugural session as chief guest. Thalassaemia is an inherited blood disease-a genetic disorder that results in a reduced rate of synthesis of one of the globin chains that make up haemoglobin. "The government is contemplating subsidising the lab to enable the poor to receive the services," the adviser said. The function was chaired by BSMMU pro-vice chancellor and head of the child Haematology and Oncology Department Dr MA Mannan.

-BDNEWS24.COM, DHAKA
 
International Thalassemia Day `07 observed in Bangladesh
Thursday, 31 May 2007
Image
Poster
International Thalassemia Day was observed in Bangladesh as elsewhere in the world with a view to raise awareness on Thalassemia. A number of organizations held discussions, seminars, rallies, and voluntary blood donation program across the country on the occasion of the day. Thalassaemia affects more then 7% of Bangladesh's population today which means roughly 11.2 million Bangladeshi are thalassemia carriers. It is estimated that about 7,483* children are born with the disease every year with expected 3,74,154* living patients.

This year the day was marked by joint programs arranged by different organizations working on thalassemia. The association of Bangladesh Thalassemia Foundation and Hematology Society of Bangladesh with an aim to promote “Standard and Quality Care” among the physicians and patients is first time ever in Bangladesh and will have a great impact in the field of thalassemia care in the country. Another important progress was made by involvement of the telecommunication giant Grameenphone in the event by patronizing Bangladesh Thalassemia Society.
Read more...
 
We got a computer from Ashfaque Memorial Fund
Monday, 28 May 2007

ImageWe have got a new computer as kind donation from Ashfaque Memorial Fund. Dr Syeda Masooma Rahman on behalf of The Fund handed over the computer at our office on May 22, 2007. With increased volume of correspondence and workload at our office we felt the need of a computer which is fulfilled with this donation. We are thankful to Dr Masooma for choosing us for the donation.

The Ashfaque Memorial Fund usually contributes in places where patients directly get the benefit. Their immediate past donation was a fine ophthalmoscope to the Unit 3 of Department of Medicine, Sir Salimullah Medical College, Dhaka. The fund was originally organized to support the bone marrow transplantation of Ashfaque Hossain, a bright medical student of 11th batch of Sher-e-Bangla Medical College, Barishal who had Acute Myeloid Leukemia (AML).

 
Art of Living members donated blood
Thursday, 17 May 2007

ImageArt of Living, Bangladesh members donated blood for Thalassemia patients on May 13, 2007 to celebrate the 51st birth anniversary of "Sri Sri Ravi Shankar", the spiritual leader and founder of the organization. The program was arranged in collaboration of the Safe Blood Transfusion Programme (SBTP), Ministry of Health, Bangladesh. The SBTP involved in such activity for the first time had expressed their will to support the thalassemia patient with safe blood component from their state of art National Reference Laboratory.

Rafi Hossin, the instructor of the Art of Living, who himself donated blood in the program stated that they will arrange such program on a regular basis and will encourage his students on voluntary blood donation.

 
We accept online donation
Saturday, 05 May 2007

PaypalWe started accepting online donation at our website. The online donation is fully secure using the famous Paypal payment gateway. Please click on the 'Donate us' button in the main menu or click the link below to start donating now. Your donation can make big difference in the life of  thalassemics.
[ http://www.thals.org/en/Online-donation/Donate-us.html ]

 
Hemoglobal delegation visit postponed
Sunday, 29 April 2007
The Hemoglobal's delegation visit to Bangladesh scheduled on 10 May 2007 is postponed. We will announce as soon as a new date is fixed.
 
Tax Exemption on Iron Chelators
Sunday, 29 January 2006
Bangladesh Thalsssemia Foundation has started a campaign for tax exemption on Iron chelators.Thalassemia patients and parents are requested to join to make the campaign successful. We are collecting signature to submit with the appeal to the authority.
 
Exjade, the new hope for thalassemia
Thursday, 19 January 2006

ImageExjade® (Deferasirox), the breakthrough once-daily iron chelator from Novartis has received US FDA approval on last November. Exjade is an easy to administer novel oral iron chelator, Exjade is taken once daily, after dispersing tablets in a glass of water or orange juice (100-200 ml). Exjade well tolerated, safe and effective in reducing total body iron in patients with thalassemia.
Read more...
 
FerriScan for iron overload
Monday, 16 January 2006

ImageFerriScan is a magnetic resonance imaging (MRI)- based new technology for the non-invasive measurement of liver iron concentrations.

In the past, liver iron concentration was only able to be measured by liver needle biopsy, an invasive and often painful procedure. Now there is FerriScan which is more accurate, non-invasive,safer and quicker procedure. It gives patients and clinicians the information needed for diagnosis and planning treatment of iron overload in thalassemia. The test received FDA approval on January 2006.
 
TIF Dubai Conference 2006
Sunday, 15 January 2006
ImageBangladesh Thalassemia Foundation participates in the 10th International Conference on Thalassaemia & Haemoglobinopathies and 12th International TIF Conference for Thalassaemia Patients and Parents held on 7-10 January 2006 at Dubai. Total 10 person from Bangladesh participated the conference. There was a meeting with TIF board regarding the thalassemia situation in the country.
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